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CEO/Executive Director

Janet Caramello, MBA, CFRE

Janet is an award-winning non-profit professional with over two decades of experience as a leader, manager, and director with for-profit, not-for-profit, and government organizations with up to $50 million budgets.

Janet also has considerable expertise and passion in the field of unique abilities. She has completed the Florida Department of Developmental Disabilities Partners in Policymaking leadership and advocacy program,  is certified in Handwriting Without Tears, and certified in Brain Gym .  She is also trained in Wright’s Law, SPARK Hanen Communication, and Picture Exchange Communication Systems.  Janet  has been instrumental as the Chair and committee member of Florida’s Advisory Council affiliated with the Department of Health that brought us as a resource for parents with a pre-natal or post-natal diagnosis of a disability.

Janet lives in Orlando with her husband of Jim and has three children.  Pete, Tony, and Raquel (who was blessed with an extra chromosome).  Through her experience with her daughter, Janet understands the beautiful rewards of this community and its challenges.


Development Manager

Amy Drow


Program Coordinator

Shannon Boon



Membership Administrator

Susan Forster, Part Time


Program Coordinator

Whitney Michielssen, Part Time

Board of Directors

Janet Benge, President

Lynn Cyr, Vice President

Sean DiMercurio CPA CGMA, Treasurer

Allison Mitchell, Secretary

Catherine Davey, J.D., LL.M.

 Byron Lawson

Erin Hagood

Kieran Hill

Ben Johnson-Markve

Diane Levine

Edward J. Schwob III, Esq.

Medical Advisory Board

Comprised of physicians, psychologists, therapists, and other health care professionals who have an interest in and/or experience in caring for individuals with Down syndrome and are familiar with accepted standards of various general and subspecialty care of individuals with Down syndrome.

Dr. Sam Smith, Chair

Dr. Lynda Pollack

Dr. Jennifer Tucker

Dr. Julie Denham

Dr. Sheryl Logan

Dr. Aditi Dagli