The Down Syndrome Association of Central Florida is an accredited and award-winning not-for-profit association founded in 1991 by parents of children with Down syndrome. It has grown from a few families to over 1,200 individuals with DS and their families. We serve families in an area of over 10 counties with help from more than 17,000 friends, professionals, volunteers and other supporters. We are governed by a volunteer board of directors. More than 50% of our board members have family members with Down syndrome.
DSACF is the leading voice for all individuals with Down syndrome and their families. We offer hope, encouragement and acceptance through advocacy, education and awareness as we guide individuals with Down syndrome through life’s transitions. Together, we create a Central Florida community composed of and dedicated to individuals with Down syndrome – and those who love them – so that each may realize their potential.
Amy Van Bergen Executive Director
Edward DeAguilera Director of Development
Susan Forster Administration
Katie DeHart Program Coordinator
Board of Directors
Ryan Hayes, President/Yonfa & Hayes
Stacy Taylor, Vice President/Advance Learning Academy
Pablo Abreu, Treasurer/Moore Stephens Lovelace
Joe Gavigan, Secretary/Walt Disney World Resorts
Rev. Chris Chandler, Christ Presbyterian Church
Mary Beth Eliason, Community Volunteer
Kieran Hill, City of Orlando
Kristi Koester, Walt Disney World Resorts
Martha Santoni, Nemours Children’s Hospital
James Walson, Lowndes, Drosdick, Doster, Kantor & Reed PA
Medical Advisory Board
Sam Smith, DO, Chair, pediatrician, Interlachen Pediatrics
Julie Denham, MD, gastroenterology, Nemours Children's Hospital
Lynda Pollack, MD, geneticist/pediatrician, Orlando Health
Jennifer Tucker, DPT, University of Central Florida
Julie Wei, MD, ENT, Nemours Children's Hospital
Affilations & Sponsors
Dates, locations, and agendas are subject to change, so please see our calendar or call 407-478-5621 for the most up-to-date information.
We also offer monthly DADS (Dads Appreciating Down Syndrome) meetings, Sibshops, playgroups, and more!
Down Syndrome Association of Central Florida
204 N. Wymore Rd.
Winter Park, FL 32789
DADS Voicemail: 407-504-1747