Our Story

The Down Syndrome Association of Central Florida is an accredited and award-winning not-for-profit association founded in 1991 by parents of children with Down syndrome. It has grown from a few families to over 1,500 individuals with DS and their families. We serve families in an area of over 10 counties with help from more than 17,000 friends, professionals, volunteers and other supporters. We are governed by a volunteer board of directors. More than 50% of our board members have family members with Down syndrome.

DSACF is the leading voice for all individuals with Down syndrome and their families. We offer hope, encouragement and acceptance through advocacy, education and awareness as we guide individuals with Down syndrome through life’s transitions. Together, we create a Central Florida community composed of and dedicated to individuals with Down syndrome – and those who love them – so that each may realize their potential.

Transparency and Financial Reports

The Down Syndrome Association of Central Florida is well known to our donors and constituents as a trustworthy nonprofit doing important work. If you need it, our federaltax identification number is 59-3124673. In addition to being the first accredited Down Syndrome Support Group in the nation through Down Syndrome Affiliates in Action, we are proud to be recognized by the Community Foundation of Central Florida as one of the most transparent organizations in the region. We have received Reviewed Status in the Foundation's knowledge base. 

2012 IRS Form 990

2011 990 Central Florida Down Syndrome Association - client copy


Amy Van Bergen  Executive Director

Susan Forster  Administration

Katie DeHart  Program Coordinator

Board of Directors

Mary Beth Eliason, President/Community Volunteer

Adam Pickett, Vice President/My One Resource

Pablo Abreu, Treasurer/Moore Stephens Lovelace

Bradford Gornto, Secretary/Gornto Law PLLC

Joe Gavigan, Walt Disney World Resorts

Rev. Chris Chandler, Christ Presbyterian Church

Ryan Hayes, Yonfa Hayes PA

Kieran Hill, City of Orlando

Kristi Koester, Walt Disney World Resorts

James Walson, Lowndes, Drosdick, Doster, Kantor & Reed PA


Medical Advisory Board

Sam Smith, DO, Chair, pediatrician, Interlachen Pediatrics

Julie Denham, MD, gastroenterologist, Nemours Children's Hospital

Sheryl Logan, MD, obstetrician-gynecologist, Women's Care Florida

Lynda Pollack, MD, geneticist/pediatrician, Orlando Health

Jennifer Tucker, DPT, University of Central Florida

Julie Wei, MD, otolaryngologist, Nemours Children's Hospital


Affilations & Sponsors

- National Down Syndrome Congress 

- National Down Syndrome Society 

- Down Syndrome Affiliates in Action

- Global Down Syndrome Foundation


Dates, locations, and agendas are subject to change, so please see our calendar or call 407-478-5621 for the most up-to-date information.

We also offer monthly DADS (Dads Appreciating Down Syndrome) meetings, Sibshops, playgroups, and more!

Event Calendar

Click Here to Become a Member or to Renew Your Membership


Down Syndrome Association of Central Florida

204 N. Wymore Rd.

Winter Park, FL 32789

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Phone: 407-478-5621

Fax: 407-478-5698

DADS Voicemail: 407-504-1747

Email: info@dsacf.org